Diabetes Blog Week: One Great Thing

By | May 15, 2012

Today’s prompt for Diabetes Blog Week: “Living with diabetes (or caring for someone who lives with it) sure does take a lot of work, and it’s easy to be hard on ourselves if we aren’t “perfect”.  But today it’s time to give ourselves some much deserved credit.  Tell us about just one diabetes thing you (or your loved one) does spectacularly!  Fasting blood sugar checks, oral meds sorted and ready, something always on hand to treat a low, or anything that you do for diabetes.  Nothing is too big or too small to celebrate doing well!”

 

Like a lot of the folks whose posts I’m reading today, I had a hard time figuring out what I could possibly write about for this prompt.  There are a  million things floating around my head for tomorrow’s post–the string of site failures I’ve had this month, taking care of my eyeballs, the ENTIRE DAYS when I do not test and just sort of wing it–but I think it’s always easier to criticize ourselves than to do what might feel like bragging.  Finally, running out of time and lacking an idea, I thought back to all of the diabetes moments that I’m actually kinda proud of, and found one common thread: I was a huge diabitch. (You can also say it dia-beyotch if you’re feeling feisty.)

I don’t mean that I get cranky when my blood glucose is off the charts, or that I can’t handle my A1c disappointments like a big girl.  I really don’t mean it in a negative way at all.  Most of the time I’m a very polite person, but when it comes to my health, my inner diabitch comes out whenever she needs to lay the smackdown.  Being appropriately diabitchy is the one thing I do best when it comes to making sure that I’m taking care of myself and acting in my own best interest even if that puts me in the sorts of confrontational situations that “ladies” generally don’t engage in.

When I’m “being my own advocate”, I self-advocate HARD.

Pump coordinator telling me that I’m “not allowed” to start a pump and CGM at the same time? Time to diabitch out and go over her head to get my personal robo-pancreas party started.

Hospital nurse* saying that I’m “too skinny to have the ‘bad kind’ of diabetes” and attempting to give me an insulin shot that would have killed me based on SOMEONE ELSE’S correction factor? Cranking the diabitch knob to 11, refusing the shot, and demanding to see a doctor before anyone else can give me anything.

Pharmacist insisting that he can only give me one vial of Novolog for the month based on my prescription? This diabitch is going to show him how to do some basic math.  (Units in vial)/(TDD) = an apology, the right number of vials and one of those CVS branded glucose meters thrown in for free as a peace offering.

 

I’m kinda like the Hulk with a busted pancreas and fewer destroyed clothes.

 

 

* To all my nurse buddies- I have only love for you, but this woman was completely terrible.

Medical Alert Bracelets That Don’t Suck

By | May 14, 2012

Medical Alert Bracelets.

They’re big, they’re clunky, they alert everyone within a 3 restaurant table radius of you that there is “something wrong,” and they’re completely necessary.  Thankfully, only the last statement is true.  It may take a little extra hunting, but thanks to the wonders of the internet, you can get your hands on a non-tacky, non-obtrusive medical alert bracelet without too much fuss.

 

Road ID

Road ID Wrist ID Slim

I first came across these bad boys when I was looking for an alert bracelet to wear while running.  Since then, the Wrist ID Slim has become my every day alert bracelet.  The Slim is clean and modern looking, and I’ve actually had a number of people compliment me on my “watch” while wearing this one.  This one is about as far as you can get from typical medical alert jewelry while still alerting EMTs that your name is Jane, you have seizures and they should call your sister.

 

Hand-Stamped Cuffs

A Copper Bracelet by JetSilverBeads of Etsy, stamped with "Diabetes"

Etsy is my go to for things that I’m not talented enough to make myself, and there are a number of classier alternatives to alert bracelets as well.  These tend to hold a lot less information than something like a Road ID (you’re almost definitely going to have to carry an info card in your wallet), but they’re more feminine and are easier to pass as regular jewelry.  In addition to the stamped copper one shown above (available here from JetSilverBeads on Etsy), you can find cuffs in sterling silveraluminum, or whatever else happens to be in the Etsy marketplace on a given day.

Stash Everywhere Bands

As one of those obnoxiously over-prepared diabetics (what, you mean you don’t carry 2 spare infusion sets at all times?) I’ve learned to stash certain supplies everywhere so that I always have them if I need them.  And since I’ve found these little guys, I’m the same way about alert bracelets:

These Diabetic Medical Alert Silicone Bands actually come in a 10 pack, so I have a couple at the office, one in my gym bag, and a few more at home that my cat has claimed as the best toys ever.  True, they don’t have all of the info that I’d like to have on a bracelet, but if I’ve forgotten or lost my main one, it’s nice to have a bright yellow marker on my wrist that tells the EMTs to check my sugs while leaving everyone else think that I’ve donated a dollar to some cause or another.

Diabetes Blog Week: Find A Friend

By | May 14, 2012

Well boys and girls, it’s my first official* post of Diabetes Blog Week and I’m already breaking the rules.  Today, we’re supposed to be listing off our favorite DBlogs, but (dirty little secret time) I don’t really follow any religiously.  Instead, my media of choice for absorbing D info is Twitter where I’m more of a lurker than an active tweeter.  The

@SomeOfTheTotallyAwesomePeopleIFollow

 

#HashtagsThatAlwaysHaveGoodConvosOrNewDFolks

Who do you guys follow on Twitter?  Anyone particularly prolific Tweeps or #tags that I should add to my list?

 

* Check out my “Pre Diabetes not Pre-Diabetes” post if you’d like to know a little about who the heck I am.

Pre Diabetes-Blog-Week (not Pre-Diabetes Blog Week)

By | May 13, 2012

As I mentioned in my previous post, I’m planning on trying to get myself through all of the Diabetes Blog Week prompts as a way to jumpstart my brain into blogging mode, because otherwise, I’m so insanely busy all the time that I think I will leave this poor little blog to wither and die.  “But why are you so insanely busy?  Don’t glamorous diabetes bloggesses sit around eating sugar-free bonbons and accidentally bleeding on things?”  Well, imaginary conversation partner, sugar-free bonbons are generally pretty terrible, and I think you’ve just illustrated the necessity of an introductory post!  Maybe I’ll eventually be motivated enough to turn this into some sort of “About” page.

Basically, I’m a 20-something lady-betic, living in one of those big-ish coastal cities, working full-time and attending grad school at night to try to follow a career path that my 12-year-old self decided would be awesome.  So far, 12-year-old me was pretty spot on with her assessment, but it’s also been hard as hell.  The hours are long and unpredictable and the work is stressful, but  get to spend my days learning from people who are smart in ways that I hope to learn to be and my nights righteously ranting about the fact that they let full-time day students register for evening classes that would ideally be filled with other people who work.

As far as diabetes goes, I’m a relative newbie.  I wasn’t diagnosed until well into my 20s, after I lost about 30 lbs one summer and became super grateful that my desk at work was right down the hall from the ladies room.  When it comes to chronic illness, though, I’m an old-hat at this.  I first started experiencing symptoms of autoimmune arthritis in my teens and finally convinced a doctor to listen to me long enough to not just diagnose the pain as “athletics related” in college.  Basically, my immune system started munching on my body long ago, and only recently decided that my pancreas would be delicious as well.

I spent about a year doing MDI (multiple daily injections) before I decided to try a go at robot parts.  Since my high school battle to get a diagnosis for my pain, I’ve become a tad bit… pushy when I want something from a doctor (some might say that I over-advocate) and long story short, I went from MDI+10 tests/day to wearing a pump and CGM within about 5 weeks of deciding that was what I wanted.  My epic battle to start both at once will have to be chronicled at some later point, but I was sort of a badass (or a completely arrogant jerk, depending on which side of the story you’re on).

Most days, my diabetes really doesn’t seem to have much of an effect on my life.  Testing and treating have just snuck their way into the routines and rituals that make up my day, and there are very limited times when I truly feel inconvenienced by this whole “busted pancreas” thing.

Other days, my diabetes just makes me want to curl up under the covers and not come out until there’s a cure or at least a way to deal with diabetes that doesn’t involve a single sharp pointy implement or off-brand juice box.

Happy Diabetes Blog Week, ladies and gentlemen.  Let’s get this party started.

Diabetes Blog Week!

By | May 10, 2012

I’ve been looking for some inspiration to get me started actually writing (as opposed to planning, second guessing and procrastinating) and I’ve found the perfect solution: the Third Annual Diabetes Blog Week!

Starting next Monday, I’ll be posting every day for a week, on a topic that the whole beetus blogosphere–or at least the folks participating–will be writing about.  Hopefully, this will get me in some sort of blogging habit.